지적장애 부모를 둔 비장애 청소년의 삶에 관한 질적 사례연구 (Qualitative Case Study on Life of non - disabled Adolescent of Parents with Intellectual Disability)

서지정보

· 발행기관 : 한국사회복지학회
· 수록지 정보 : 한국사회복지학 / 68권 / 3호 / 73 ~ 103페이지
· 저자명 : 강승원

초록

본 연구는 지적장애 부모를 둔 비장애 청소년들의 삶의 모습과 그들의 삶 속에서 드러난 어려움은 무엇인지 심층적으로 살펴보고, 이에 대한 사회복지적 함의를 제시하고자 한다. 이를 위해 2014년 1월부터 5월까지 청소년 5명을 중심으로 질적 사례연구 방법을 활용하여 사례 내 분석과 사례 간 분석을 하였으며, 연구결과의 신뢰성을 확보하기 위해 매 단계마다 엄격성을 확보하였다.
분석결과는 크게 ‘비장애 청소년의 성장이야기’, ‘비장애 청소년의 세상살이 이야기’로 분석하였으며, ‘공부를 하라는 가족이 전혀 없음’, ‘학업 성취감을 알아가며 앞으로 나아감’, ‘나만의 공간으로 숨어버림’, ‘일찍 어른이 되어버림’, ‘다른 부모, 같은 사랑’, ‘가족의 가족이 나를 키움’, ‘나를 그대로 받아들여주는 친구가 있음’, ‘가난한 생활에 짓눌려 살아옴’, ‘힘듦과 힘냄의 양날에 서있음’으로 범주화 하였다.
분 연구결과를 바탕으로 이론적 지평을 넓히고, 가족의 장애이해, 부모역할훈련프로그램과 사례관리 등 실천적 방안을 제시하였으며, 실태조사와 경제적 지원을 위한 수당제도 등 정책적 방안을 함께 제시하였다.

영어초록

In this study, it investigates the life of normal adolescents who have parents with intellectual disability and their difficulties which suggested social welfare meanings of this study.
In order to conduct wide and in-depth analysis on cases by utilizing the characteristics of qualitative case studies, it describes and analyzes the intellectual disability parents’ normal children in detail from the viewpoint of an insider through in-depth interviews, various sources and diverse data collecting methods. As for the subject of this study, both parents should be persons with intellectual disability and their child shall be non-disabled and at least a high school student or older. Through the intentional sampling, five late adolescents who were in high school, all males participated in the study. The data collection process had been conducted from January 2014 to May, which is commonly utilized for qualitative case studies, and comparative analysis between cases were practiced for analysis. For credibility of the research results, it obtained severity at each stage by meeting the standard.
The analysis results were largely divided into “growth story of non-disabled adolescents” and “life of non-disabled adolescents". Nine upper categories analyzed the common features in each case. The nine categories were “no one tells me to study”, “advance while learning the sense of academic achievement”, “hide into my own space”, “having to grown up early”, “different parents but same love”, “relatives raised me”, “have a friend who accepts me as I am”, “being pressed by poverty”, and “standing on a knife edge of being hurt and taking heart”.
Based on the in-depth research on normal teens that have intellectually disabled parents, theoretically speaking, this study expanded the prospect of study on intellectually disabled to their normal, intellectual teenage children. As for practical significance, understanding their parents’ intellectual disability, parenting technique training, case management from the community level is suggested. Rregular real condition research of the families, allowance system for economic support et al. is suggested in policy aspect.

참고자료

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